Week 2

SATURDAY May 2: Cory lost his ability to walk and sit up as the disease progressed. More testing was done, and the pain continued to get worse. He could no longer swallow and was put on an all liquid diet. He choked on the liquid as well. He recieved his 2nd IV immunoglobulin treatment. Cory has still not been sleeping much.

SUNDAY: Cory and Chaney's families fasted and his family all gathered in his room to break their fast that evening. He began losing the ability to speak and due to his rapid decline, was moved to the critical care unit. He recieved his 3rd immunoglobulin treatment. Visitors are not allowed to stay in the room at night in the critical care unit and that was hard for Cory as he did not want to be alone. Bill stayed the night in the waiting area but was asked to be with Cory around 5am as he had a hard long night.

MONDAY: Rubi and Scottie got to go see their dad. They sat Cory up as much as possible, put a hat on him, and took the oxygen mask off so Rubi would not be so scared. He was still hooked up to so many things that she could tell he was sick. Rubi was so tender with her daddy. She patted his hand and tickled his toes. Chaney said that it was hard for Cory cause he misses his Hunry so much and he couldnt hold or play with her. He is struggling emotionally with his inability to function and is getting more frustrated by the day. He is still in incredible amounts of pain. After the girls left with grandma & grandpa, the doctors determined that he could no longer eat for himself and it was time for the feeding tube. Chaney said that the first time they tried to put the tube in it kept kinking. Cory couldnt say much but his eyes were wide with pain and his body was involuntarily convulsing as they tried to force the tube down. Chaney had to leave the room for the second attempt and sent Cory's brothers Scott & Ty in. They said that the second attempt was much like the first, and very hard to watch. Luckily on the third try it seemed to go in just fine. Scott, Im sure you can give better details on this as I am hearing it second hand. His 4th and final IV immunoglobulin treatment of this first batch was given. He had a terrible night, and the nurses had to get Bill to sit with Cory at 3am because he was having night terrors.

TUESDAY: Cory continued to be in a lot of pain. He was in a really bad mood and was really frustrated with his struggle to communicate his needs to his family and to the doctors. That evening Chaney took John Richi back to see Cory and didnt return to the waiting room for a very long time. As they went in, the nurse was doing a routine breath test (done every 2 hours around the clock every day) to watch for respitory failure. As she put the clip on his nose, it caused Cory to have a severe internal nose bleed (due to damage done when putting in the feeding tube). Cory tried to tell the nurse that he had a large amount of blood running down his throat, but due to his difficulty speaking and communicating she couldnt see anything wrong and went to leave his room. As she did, something alerted her to a problem and Cory was choking and aspirating on his blood. It was a very scary moment and had the doctors and nurses jumping. They couldnt get the bleeding to stop and had to pack one side of his nose. Bill stayed the night with him.

WEDNSDAY: Around 4pm Cory was put on a ventilator and intubated as he reach respitory failure. He is on controlled sedation so the nurses can wake him up and check on his stats. Chaney said Cory is ticked that they dont just put him under and keep him that way so he can finally get some rest. He wants to wake up when this is all over. He can nod in response to questions but that is not his idea of communication and continues to be frustrated with that. That night Bishop Mecham, Bro. McDonald, Bill, Scott, Ty, Jim, Ben, and John all gave him another blessing. He has had many throughout this process, but this one had the most priesthood at one time;) This was his first night alone. I havent heard how that went yet.

THURSDAY May 7th: Cory was mostly sedated. He got his first bag of the second round of the IV Immunoglobulin treatment (thats a lot to type so I am gonna abbreviate it from now on as IVIG). He is also on antibiotics because he has an infection in his lungs from aspirating. Cory did wake up as Chaney was leaving and tried to communicate with her. They have given him a communication board and Chaney has to hold his finger and he has to try to move it to the letters he needs. At one point Chaney said he just started knocking on the board and she asked him if he was trying to say knock knock. Cory didnt find that very funny. He did manage to ask her to make sure everything is being documented because he has a tendency to forget things. If he forgot this I think we would all be surprised! I think that brings us up to date. I know there are a lot of missing details right now, but as Chaney remembers things I will edit the post and try to update them to keep them as accurate as possible. If anyone has better memory, please leave comments with the details, that would help. Chaney is kind of in a blur right now and is doing her best to balance all of the trama, information, and little girls right now. She has had a tremendouse amount of help from all of the family and couldnt be more greatful.